Managing to Live With Rheumatoid Arthritis in my 20's

Living with rheumatoid arthritis (RA) at the young age of 23 presents a unique set of challenges. While most of my peers are enjoying their youth, embarking on adventures, and planning their futures, I navigate a different path filled with physical limitations and persistent discomfort. My journey has led me to discover valuable strategies to embrace life fully, even when countless hurdles stand in my way.

If you didn't know, rheumatoid arthritis is an autoimmune disorder where the body's immune system mistakenly attacks its own joints, resulting in inflammation, pain, and swelling. Living with this condition means coping with chronic discomfort and the unpredictability of flare-ups.

Rheumatoid arthritis affects approximately 18 million people worldwide, with a significant number being young adults. Many people, including myself, struggle with the fatigue and stiffness that can often be misinterpreted as typical youth challenges, leading to misunderstandings among friends and family.

Mornings can be particularly tough. Every day starts with stretching to wake up my body and hoping for a pain-free start. Unfortunately, my mornings typically include strapping on knee braces, which not only provide support but also serve as a constant reminder of my limitations.

Once dressed, I apply a CBD cream on my knees for pain relief. While this topical solution helps momentarily, the relief is often unpredictable. This preparation means that, unlike my peers, I must carefully plan my day around my condition.

Finding the right medications has been crucial in my journey. I’ve cycled through various treatments, including methotrexate and biologics, totalling over five different approaches to manage my symptoms effectively. Collaborating closely with my healthcare team has been essential. It requires patience and diligence, as the trial-and-error process can be frustrating, some drugs take months to show improvement.

The process is often marked by challenges such as fatigue from side effects. For example, methotrexate may cause nausea or hair loss, which adds another layer to my daily struggles.

Despite my discomfort, staying active is vital. Working with a physical therapist has allowed me to learn effective exercises tailored for those with arthritis.

Low-impact activities such as swimming and biking have become cornerstones of my routine. On average, I aim for 30 minutes of exercise at least three times a week. This approach has not only improved my mobility but has also significantly reduced stiffness after active days. It is very difficult for me to do these exersizes though considering I work full time and I'm on my feet all day every day anyway. I try not to beat myself up if I can't make time or if I'm in too much pain.

Living with arthritis extends beyond the physical aspects; the emotional challenges can be equally demanding. I often feel isolated, especially when social obligations arise.

Engaging with support groups, both online and local, has been beneficial. One study indicated that participants in support groups reported a 40% increase in coping mechanisms. Connecting with individuals who understand my experiences offers validation and helpful resources for managing the emotional ups and downs associated with RA.

One of the notable challenges of living with arthritis in a social context is the pressure to "keep up" with friends. I frequently decline invitations to events and outings because of the fear that I will struggle to manage the physical demands. When I do decide to participate, preparation becomes essential. I always bring my crutch or wheelchair based on the event's accessibility. It can be disheartening to feel limited while watching my friends engage in activities effortlessly.

Communication plays a pivotal role. I have learned that being open with my friends about my condition helps them understand my limitations better. While they may not fully grasp the daily struggles, explaining my experiences creates empathy, making it easier for them to include me without awkwardness.

Over time, many of my close friends have adapted our activities, suggesting quieter outings like movie nights or nature walks, allowing me to join without overexerting myself. This adjustment has made it easier to celebrate moments together, reinforcing that connections are not solely based on high-energy adventures.

Maintaining a balanced diet has been transformative in managing my symptoms. I have learned that specific foods can either worsen inflammation or help alleviate it.

Incorporating anti-inflammatory foods such as fatty fish, nuts, leafy greens, and berries has been foundational to my nutrition strategy. Since making these dietary changes, I have experienced a noticeable improvement in my energy levels. Research suggests that diets rich in omega-3 fatty acids can reduce joint inflammation by 30% over time.

In addition to food choices, ensuring adequate rest and managing stress is vital. I practice mindfulness through meditation and deep-breathing exercises to combat the mental strain that can exacerbate physical pain.

Having a strong support network is vital for me too. I am grateful for my family and friends, and I’ve taken proactive steps to find additional support. Joining local arthritis support groups has provided me with the opportunity to connect with those who understand my struggles. Sharing experiences in these groups not only inspires resilience but also equips us with practical strategies to manage our symptoms. The sense of community has become an essential resource in navigating the challenges posed by RA.

Living with RA requires adaptations in my daily life. Sometimes I must redefine what "normal" looks like for me. Embracing tools such as mobility aids has allowed me to partake in daily activities without overexerting myself.

Simple adjustments, like utilising a chair while cooking or using grabbers to reach items on high shelves, make a significant difference in my day-to-day living. Although these adaptations may seem small to others, they represent crucial changes that contribute to my overall quality of life.

As a young adult living with rheumatoid arthritis, uncertainty about the future often weighs heavily on my mind. Will I always find effective treatments? Will my condition worsen over time? Will my future partners ever accept that this is what I'll be like for life?Though these questions linger, I remind myself that many people with RA enjoy fulfilling lives. Focusing on what I can control, like my activities and mindset, helps me stay hopeful.

Planning for the future can be intimidating, but I strive to maintain a positive outlook. Pursuing my passions in my career and personal life has become a cornerstone of my happiness, enabling me to overshadow the fears that occasionally resurface.

Living with rheumatoid arthritis in my 20's presents its unique challenges, yet it does not define who I am. Through effective management, a supportive network, and a commitment to making necessary adaptations, I seek to lead a fulfilling life despite the obstacles RA presents. By establishing a stable routine, investing in my health, and connecting with others facing similar struggles, I find empowerment in navigating life’s complexities. Each day may bring its challenges, but with resilience and a supportive community, I celebrate the little victories and remain hopeful for what lies ahead.