Coming to Terms with Using a Wheelchair
- Saskia Müller
- Jun 29
- 5 min read
Adjusting to the idea of using a wheelchair part-time has been a profoundly emotional experience for me. I often struggle with feelings of guilt and shame, not just for needing a mobility aid, but also for what it seems to say about my abilities. Sitting in a wheelchair can feel like admitting defeat. It underscores that my knee pain is more than just a temporary issue. However, I've realised that embracing this new reality is essential for my mental and physical well-being.
My guilt arises from a strong belief that needing assistance equates to being less capable. Every time I sit in the wheelchair, I question my strength, resilience, and determination. I inevitably compare myself to those who can walk unassisted. This mental battle is draining and often leaves me feeling embarrassed about my condition. It doesn't help that my ex was embarrassed to be seen in town with me in my wheelchair. She didn't want her friends seeing me in my wheelchair, and I see now how much of a red flag that is.
Guilt stems from societal views on disability. We live in a world that prizes independence and self-sufficiency. For instance, a survey conducted by the Kaiser Family Foundation found that over 70% of Americans equate disability with diminished worth. This perception makes needing a wheelchair feel like a failure, which is something that can be overwhelming for me. It's crucial to recognise that these feelings are valid but should not dictate how I view my experience or my need for support.
Living with this persistent knee pain is a daily challenge. Activities that were once simple, like going grocery shopping, dancing, or even taking a short walk, have become daunting. Standing for several minutes or walking more than a few hundred feet can lead to significant discomfort. Using a wheelchair offers me relief from that pain. It allows me to navigate my surroundings with greater ease while maintaining my sense of freedom. I’ve started to see this choice not as a sign of weakness but rather as a wise decision for my overall health.
Recognising that I need help has been one of the toughest parts of my journey. Accepting a wheelchair involves understanding that my body functions differently now. It can feel like a major shift. However, I've learned that accepting assistance is not a sign of weakness; it often requires great strength to admit when I need support.
As I embrace the idea that using a wheelchair can enhance my quality of life, I begin to appreciate the freedom it offers. It isn't about giving up; it's about thoughtfully adapting to my new reality.
To combat feelings of guilt, I’ve worked on reshaping what it means to be “mobile.” Mobility is not solely about walking, it encompasses movement and freedom, regardless of how one realises that. Each time I shift my mindset and view someone using a mobility aid as someone taking control of their life, I feel lighter. This change can start small. For instance, when I see someone confidently navigating the world in a wheelchair, I remind myself that everyone's journey is unique. Understanding that I am not alone in my struggles has been crucial in lessening my guilt.
Connecting with others who understand my journey has been invaluable. Online forums and support groups provide safe spaces to share experiences openly. Through these discussions, I've come to see the rich diversity of stories among wheelchair users.
I have started to reshape my narrative surrounding the wheelchair. Rather than seeing it as a crutch or a sign of incapacity, I view it as an empowered choice that facilitates my movement. This shift is about realising that my worth isn't determined by my ability to walk but by how I adapt to face challenges. Taking gradual steps, quite literally, toward this new perspective has been transformative. Each time I sit in the chair, I remind myself that I am making a thoughtful decision to protect my body from further injury. This mindset is liberating and allows me to embrace the wheelchair free from guilt.
Seeking guidance from a counsellor with experience in mobility challenges has also been beneficial. Professional support provides tools to manage feelings of guilt and address the societal stigma surrounding disability. Talking through my emotions with someone who understands helps me untangle the complex feelings associated with needing a wheelchair. It also equips me with strategies to navigate my guilt and embrace this change.
Incorporating my wheelchair into my daily life has helped me view it as a normal, accepted part of my routine. Finding a rhythm that works for me is essential for establishing a positive relationship with my wheelchair.
Instead of avoiding situations where I might need to use it, I proactively plan outings and activities, integrating the wheelchair into my plans. This approach has made a significant impact on how I approach daily tasks and social engagements. For example, I recently attended a friend gathering where I confidently rolled around, engaging with everyone without the worry of pain distracting me. I never would have done that when I first brought my chair.
As I integrate my wheelchair into my daily life, I've begun to celebrate small victories. Each independent outing using the wheelchair feels like an achievement. When I choose to rest rather than push through the pain, I recognise it as a victory for self-care. Celebrating these moments helps disrupt the cycle of guilt and shame. It creates pride and ownership over my choices, highlighting the positives that come with using my wheelchair.
I am learning to practice self-compassion. Needing a wheelchair is not a reflection of my character or worth. Life is about navigating challenges, and my responses to these challenges showcase my resilience. By treating myself with kindness, I can soften the harsh judgments I often impose on myself. Each day, I am reminded that my value does not hinge on my physical capabilities. Instead, it is found in my ability to adapt, my courage to seek help, and the love I show myself throughout this journey.
While the journey has its ups and downs, I can finally see hope for the future. Accepting my situation has paved the way for new possibilities. Rather than feeling restrained by the idea of needing a wheelchair, I look forward to the experiences still available to me, whether I am walking or wheeling. There are countless adventures yet to be experienced. Using my wheelchair doesn’t limit these opportunities; it can expand them. I am learning that mobility, in any form, allows me to engage with the world and enjoy life to its fullest.
Every day brings new challenges and chances for growth. Through connecting with others, reshaping my narrative, and practicing self-compassion, I'm transforming my relationship with my wheelchair.
If you find yourself facing similar struggles, remember that you are not alone. This transitional phase can lead to profound self-discovery and understanding. Embracing mobility aids may be challenging, but they can also open doors to new adventures. Be kind to yourself as you navigate this path.